EveryLife Foundation #RAREis Scholarship Fund

Living with a rare disease means managing unique challenges, including frequent doctor visits, rigorous treatment regimens and hospitalizations, and exposure risks. While quality and duration of life continues to improve thanks to improved diagnosis and treatment approaches, individuals living with rare diseases still face disparities in achieving traditional life milestones. That’s why the EveryLife Foundation for Rare Diseases established the #RAREis Scholarship Fund – to enrich the lives of adults living with rare diseases by providing support for their educational pursuits.

Thanks to the support of Horizon Therapeutics, The EveryLife Foundation for Rare Diseases will provide one-time awards of $5,000 scholarships to 70 rare disease recipients in 2023.

Annual Amount


Additional Selection Criteria


Anyone 17 or older, who is a resident of the United States and who has been diagnosed by a physician as having any form of rare disease, regardless of treatment status.

Application Process


  1. Click here to start your application: https://start.scholarsapply.org/?_gl=1*dc8k11*_ga*MjA4ODEzMjgyNi4xNjc4MTI1NjMy*_ga_WRXNLCNQJ6*MTY3ODEyNTYzMS4xLjEuMTY3ODEyNTg3Ni41NS4wLjA.. You will be directed to Scholarship America, the company we have hired to manage the application.
  2. Create a Scholarship America profile/account. If you applied a previous year, you should already have an account and can just login with your password. This is a quick step to get you into the Scholarship America Hub.
  3. After your profile is created, the Scholarship America Hub will generate ALL scholarships you are eligible for (BONUS!). You can then search for the RAREis Application and start the application process, including:
  4. Your application requires documents to be uploaded. You must provide your most recent transcript of grades. Grade reports are not accepted. Unofficial or online transcripts must display students full name, school name, grade and credit hours for each course and term in which each course was taken. You must also submit a completed Diagnosis Verification Form: https://learnmore.scholarsapply.org/wp-content/uploads/RARE-Diagnosis-Verification-Form.pdf
  5. You must answer the essay question: “In what ways can your education and career goals contribute to diversity, equity & inclusion, and/or accessibility for the rare disease community?”, (2,000 characters maximum, which is approx. 350-400 words).
If you run into any issues acquiring transcripts or uploading any of the required documents, please contact Scholarship America at rareis@scholarshipamerica.org or 507-931-0799.


April 13, 2023

For the application or more information go to: